Privacy Policy


Policy Statement Privacy at Muscular Dystrophy South Australia.

Muscular Dystrophy SA is committed to protecting the personal privacy of all people involved with the organisation and is bound by the privacy laws.

In addition to information from staff, volunteers, donors and sponsors, Muscular Dystrophy SA provides specifically designed services which are not available elsewhere and are tailored to meet the specific needs of people with nerve and muscle disorders. The MDA can be contacted at –

36-38 Henley Beach Road,
Mile End SA 5031

Telephone 08 8234 5266
Facsimile 08 8234 5866
Freecall 1800 685 266


Muscular Dystrophy SA collects personal information about its staff, volunteers, sponsors, stakeholders, donors, clients, their families and carers and contractual data for funding authorities in order to provide them with its services. Personal information includes –

• personal details (eg title, name, address, phone number, email, date of birth), tax file number;
• information about a client’s health,
• next of kin and contact details in case of emergency,
• limited financial information.

When we have collected your personal information, we use it to provide you with services appropriate to your needs. Muscular Dystrophy SA may disclose some of your personal information in circumstances where it is –

• required by law (eg to the Australian Taxation Office), and
• authorised by law

Muscular Dystrophy SA may also use personal information held about you to keep you informed of new services offered by us.

In all other cases, Muscular Dystrophy SA will only disclose personal information it has collected about you to another person or service provider when consent has been provided by the client or the client’s authorised representative (see the Consent to Disclose Information form).


Muscular Dystrophy SA relies on the accuracy of the information you provide. If you think that Muscular Dystrophy SA holds information about you that is incorrect, please contact us as set out above, and at your request, we will take reasonable steps to update our records. If we decline to correct our records for any reason, we will provide you with details of those reasons.


Under the privacy laws, you are generally entitled to access the personal information we hold about you. If you wish to access your personal information, for security reasons, we may request you to give us written permission.. This will assist us in identifying you to our satisfaction and will also assist us by identifying the type of information to which you are requesting access.

We will then locate the information and make arrangements to give you access. Muscular Dystrophy SA may charge you our reasonable costs incurred in providing you access to information held about you. However, we do not charge a fee for making a request for access.

We will try to provide you with access to the information you have requested as soon as possible.

In some circumstances, you may not be entitled to access the personal information we hold about you. For example, you may not be able to access the personal information held about you if providing you with access would unreasonably interfere with the privacy of others. If this happens, we will give you reasons as to why we are unable to provide you access.

Requests for access, or for further information about how we manage the personal information we hold, should be directed in the first instance to the CEO at the above address.


Should you wish to make a complaint which relates to your privacy, we encourage you to contact our CEO, who is Muscular Dystrophy SA’s complaints officer (at the address above).